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Cake day: December 13th, 2024

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  • Is it? The Ehlers Danlos plus a car accident has caused bone spurs to form in my neck, and NSAIDS are the first-line treatment for that too, because the swelling does put more pressure on my spinal cord. I’ve switched to tylenol, but the dizziness has gotten worse so maybe the rheum was right.

    The ulcers happened after a period of intense stress. My stepfather, both grandparents, and cat all died within a year and a half, then I got fired because my work started to slip. The gastro pain also came with nausea/vomiting, loss of appetite, tachycardia, post-exertional malaise, and shortness of breath. I went from doing 20k steps at work to not being able to walk around the grocery store without feeling faint. I don’t feel safe driving any more. I sweat and get shivering chills when I gotta poo. Since quitting NSAIDs, the nausea has resolved, but not the rest of it, and my gastro says they can’t do anything more.

    My cardiologist has determined that there’s nothing physically wrong with my heart. It’s just randomly jumping from 70 to 180 for a short amount of time before going back to normal. Beta blockers make my resting heart rate too low, and the PSVT isn’t dangerous, so there’s nothing the cardio can do.

    My neuro thinks that my vagus nerve is also trapped in the disc osteophyte complex, plus they’ve found a glioma in my thalamus and a hemangioma in my T9 vertebrae, and those can also cause my symptoms. But the only thing they can do about it is pass me up the chain to a different specialist.

    The autonomic function clinic finally has an opening for me this summer, so maybe they can do something. If not, I’m jumping off a bridge.

    There is more going on, but this is what I mean when I complain that I’ve got an assorted list of diagnoses, with no coordinated care. My functionality has slowly been getting worse since the car accident in 2018, it sped up after the funerals and getting fired in 2024, and nobody has been able to actually help me. The only advice I’ve gotten so far is “Go see this other person”, “take ibuprofen”, and “don’t take ibuprofen”.


  • faythofdragons@slrpnk.nettoLemmy Shitpost@lemmy.worldCats are wise
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    4 days ago

    I’ve trained my cats to come to a dinner bell. Now, instead of yelling at me for food, the youngest cat has figured out how to ring the door chimes when he’s hungry.

    On the plus side, if my cats ever accidentally get outside, the bell is loud enough to hear across the neighborhood, so I can summon them.

    Edit: The bell in question, since everybody always thinks I use a different kind of bell.